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Top 10 Reasons Why Having a Baby in the NICU is Awesome

15 May

I never really thought about the NICU until the Happy Baby landed there on Day 1 of his life.

I never really thought about the hundreds of mommies who end up there as well.

Some with preemies, some with health complications like us, and some… some who never even get to take their baby home.

There’s Kristen and Patrick who had their twins at 24 weeks.

Sadly, Jackson did not make it, but his brother Wesley is hanging on at 2 lbs 2 oz.

Kristen comes to visit the Happy Baby and me and she is always smiling – always hopeful for her little man.

Then there’s Dareen who had triplets at 28 weeks.

Dareen who is there all day, every day, standing over her buddies’ isolets and willing them to get through yet another surgery.

Finally, there’s LaShay.

LaShay and her little Prince Kendrick who one day seems to take two steps forward and then the next day two steps back.

LaShay and Kendrick have been in the NICU since January.

These 3 mommies share a commonality.

They are warriors.

They are fighting a battle with an unknown end.

But they have not lost hope – not given up.

Because life is something to fight for.

When you’re in a battle like this day in and day out, sometimes you just need a little something to lift the burden.

A little lemonade, shall we say. :-)

So here is the card I made and handed out to all the NICU mommies on Mother’s Day.

Maybe you can share it with a NICU Mommy you know.“Be strong and courageous.  Do not be afraid, for the Lord your God is with you wherever you go.” Joshua 1:9

To all the Warrior NICU Mommies out there – Jesus Loves You!

Second Chances

11 May

When I was in 10th grade, I completely messed up a research paper that was probably the biggest grade I’d get in English class that year.

The teacher took me aside and gently told me the ways in which I had failed to complete the assignment and I began crying enough tears to fill a swimming pool.

But as I sat there with my cheeks all wet and thinking that I would never be asked to move up to the 11th grade, my teacher (who happens to be a famous author and blogs over HERE) said that she would let me have a second chance.

If I redid the assignment correctly, she’d toss the other paper and it would all be like a bad dream.

Second chances…

When we got pregnant with the Happy Baby one thing that kept marching through my brain was this thankful spirit that the Lord was giving me a second chance.

You see, with the Happy Buddy, I was a hot mess the whole first year of his life.

I fretted constantly about his growth (is he gaining enough??), his nursing (what if my milk supply dwindles and I have to put him on formula?!), his schedule (I can’t possibly go to church today because it might interfere with his nap), his health (did that stranger really just kiss my baby on the cheek?!), his pacis falling on the floor (I wonder what kind of deadly disease is now lingering on that MAM), his diaper rashes (should I be doing cloth diapers?), his first foods (is he going to die if I don’t feed him organic?), his sleeping (will he remember that we let him cry-it-out and hold it against us forever?), his playing (why hasn’t he rolled over yet?  So-and-so-friend’s baby is practically walking already!), what kind of soap I used for his baths (I’d never read ingredient labels for soap until I had a kid)…

But then I worried about bigger issues, too (hello vaccinations).  Almost to a point where I felt paralyzed by the fear.

The fear that I would make a decision and somehow ruin the Happy Buddy forever.

By the time the Happy Buddy turned one I looked back and felt kind of sick to my stomach that I had missed out somehow.

I had spent so much time being anxious that I don’t fully remember the moments where I just plain enjoyed his sweet baby-ness.

I could not wait to get a do-over.  Another baby that I could say, “Eat artificially colored M&M’s and greasy pizza for all I care, just let me kiss those chubby cheeks a hundred million times a day.”

Naturally, when the Happy Baby arrived and before I could even kiss his precious cheeks twice the doctors were whisking him away uttering phrases like, “It could go either way…”, I had the thought What about my second chance?

And then the days turned into weeks and suddenly the fears I had about the Happy Buddy seemed kind of silly in light of the obstacles the Happy Baby was already facing at the beginning of his life.

Suddenly I didn’t care so much that the NICU uses Johnson & Johnson soap for bath times.

Suddenly I didn’t care so much when the doctor said they needed to start adding formula to my breastmilk because he’s breathing so fast and burning so many calories he needs the extra boost to help him grow.

Suddenly vaccinations seemed like a walk in the park when we were faced with the decision to put the Happy Baby on chemotherapy-powered drugs for 6 long weeks to try and fight this virus.

Suddenly the things I am anxious about are more about how no one is there to hold him in the middle of the night, respond to his every cry, stroke his hair back, turn his mobile on, or hold his paci in place for hours at a time just because it makes him happy.

And when I am with him, I study every single God-painted feature on his sweet little face is and consider how precious each of his tiny toes and fingers are.

I drink in his smell, thank Jesus for every diaper change, and cherish the feel of his peach-fuzzed earlobes.

I hold him and sing to him and find peace in the moment that is ours.

When I am with the Happy Baby there is no time to think about the long-term consequences of all that he’s endured the last 5 weeks.

Because I’ve learned that I have no control over the outcome of the Happy Baby’s life.

No amount of organic food I ate during my pregnancy could have made a difference in how the Lord designed the Happy Baby and this season of our lives right now.

With the Happy Buddy I had let my pride rule my faith – bearing this unnecessary, strangling burden for every single decision.

Jesus says parenting is a whole lot easier than that (check out Matthew 11:30).

Now don’t get me wrong.

I am not saying to throw all caution to the wind and let your child eat chicken nuggets, fries, and chocolate milk every day (although if your baby is in the NICU for an extended period of time, this action might be unavoidable), stay up late every night, and exist without any boundaries whatsoever.

I am also not bashing my sweet cloth diapering or organic-food-growing friends.  I’d totally do cloth if I wasn’t so addicted to convenience and I try to buy organic whenever our budget allows.

You must find what’s best for your Happy Home (and never judge another Happy Home that may choose to do things differently than you).

What I am saying is that while making well-educated, prayerful choices for our children is super important (you can bet the Happy Hubby and I have been on our knees about every little thing we’ve chosen to pursue concerning the Happy Baby’s health), when we let ourselves be overwhelmed by the responsibility, we take our eyes off of Christ and the very fact that our kids are not our own.

They belong to Him.

We are not in control.

This is the second chance I have been given.

To choose to treasure the time I do have with my baby – however long it may be – and not be afraid of what the future holds.

Because He is God’s child.

A child who was fearfully and wonderfully made by the very hands of Christ, who had all the days ordained for him written in His book before one of them came to be (Psalm 139).

A child who is covered by the promise that God has good plans for his life – plans to prosper him and not to harm him.  Plans to give him hope and a future (Jeremiah 29:11).

And I’m pretty sure that whether or not he wears cloth diapers is going to change that.

“Trust in the Lord with all your heart

and lean not on your own understanding;

in all your ways acknowledge him,

and he will make your paths straight.

Do not be wise in your own eyes;

fear the Lord and shun evil.

This will bring health to your body

and nourishment to your bones.”

Proverbs 3:5-8

*Update – God has blessed us with good progress this week!  The doctor took the Happy Baby’s Superhero Hat away (phew) and he is now on a high air flow machine.  We are praying that he will be weaned of that soon.  He continues to seem stronger each day – a credit to our great God.  Next week they will repeat the swallow test to see if he is strong enough to nurse/take a bottle again (please pray for victory in that!).  We are also waiting on some test results in order to move forward with a diagnosis.  Thank you, everyone, for your prayers and support.  I am eternally grateful for the strength your faith has given mine!*

An Unexpected Blessing Package

25 Apr

Click Image for Photo Credit

Does anyone else get butterflies at the sight of a package on your doorstep???

You pull into your driveway and there, perched on top of the doormat is a brown box – a container full of mysterious items from a precious sender.

The perfect recipe to cheer a weary soul.

That is precisely what I found yesterday on our doorstep on Day 23 of our NICU journey.

Day 23 where they discovered the Happy Baby had developed some bizarre virus and would need immediate treatment.

Treatment that is pretty much like chemotherapy and will take a period of 42 days to administer to our tiny baby.

Coming home after such a mind-blowing diagnosis (and the doctors aren’t even sure that the virus is related to his still rapid breathing – ugh), seeing that package was like seeing a giant pool of water in the middle of the blazing hot desert.

A sweet friend had taken the time to send us some goodies and the Lord made sure it arrived at just the right moment.

Want to know what was inside the box (complete with handwritten notes personalizing each happy thing)??(There were actually a few more items – bubbles and crayons, etc. – but the Happy Buddy was so excited about his ‘entertainment’ that items kept disappearing off of the table before I could snap a picture!) :-) This was one of my favorite items in the box as I seem to be (aside from turning to the Lord) turning to chocolate for therapy as we try to get through each day.

If you’re wondering why I haven’t posted in awhile it’s because we are either at the hospital or I am in a chocolate-induced coma. :-)

A friend of ours advised us to find something small everyday that make us happy in order to help us cope – he said even if it meant gaining ten pounds.

So while I am trying to lose the baby weight, my emotions are trumping the desire to get back in my skinny jeans.

So I thank you, sweet friend-who-sent-us-the-box, for including chocolate. :-)

Like I have said before, I cannot thank you all enough for the comments you have left on this blog, on my Facebook page, or in my email inbox.  I wish to the starry hosts that I had the time to write each of you back and tell you how much the story you shared, or the Bible verse you typed, or just your thoughtful word to let me know you are praying has encouraged my heart.

Seriously.  They have been my lifeline!

I am desperately looking forward to the day when I can post the Happy Baby’s biggest, baddest WELCOME HOME party! :-)

But for now, I am going to be like Noah from the Bible… Climb on the ark and endure the next 42 days of storm because I know there will be a rainbow on the other side.

Please say a prayer that the Happy Baby won’t have any scary side effects from the treatment and that miraculously this drug will work to heal his breathing issues as well.

And while you’re praying, ask Him if there is anyone you could send an Unexpected Blessing Package to today.

:-)

“To send a letter (package) is a good way to go somewhere without moving anything but your heart.” Phyllis Theroux

There’s No Place Like Home

18 Apr

Several weeks ago I mentioned to a friend that I had a dream of owning a pair of red shoes.

There’s something about red shoes that just speaks FUN.

Well, that same friend showed up at my house a few days after our conversation – toting a shoe box.

I love my new red shoes.

I wore them on the day we moved the Happy Baby to a different hospital’s NICU (the original hospital had reached a point where they just couldn’t offer the resources and specialists our little man so clearly needed).

A nurse noticed my red shoes right away and said with a smile, “You just click your heels together, darling, and you’ll all be home before you know it.”

I liked her Wizard of Oz reference… It made me happy to think that maybe wearing my red shoes would help the Happy Baby come home faster.

So I have literally worn these things EVERY DAY.

But as the days have passed and the Happy Baby has not made any progress… and the doctors continue to order more and more tests and make super scary speculations about his condition… I began to lose confidence in my red shoes.

Doubt has crept in, the ‘Why, God??’ questions have popped out of my mouth on more than one occasion, and I’ve shed enough tears to supply a city’s worth of water.

But today I was driving down to see the Happy Baby and the words of Laura Story’s song ‘Blessings’ sprinkled their way across my heart…

“When darkness seems to win we know that pain reminds this heart that this is not, this is not our home…”

Home…

Heaven…

A place where there is no darkness or weeping or sickness or hurt…

We must not lose the eternal perspective, my friends.

When placed in the context of eternity and the eternal purposes of God, our troubles are – no matter how painful, or overwhelming, or disappointing they are – light and momentary.

We can rejoice in the midst of them because we have the confidence that God is using it all to achieve His glorious good.

He is doing good – somehow, some way.

The Happy Hubby took my hand the other day and said, “Baby, we’re running a marathon here, not a sprint.”

And it was then that my red shoes no longer were a symbol to me of getting the Happy Baby home quickly (although that is my sincerest desire).

My red shoes became a reminder of the Home that my heart is truly yearning for – Heaven.

“Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.”

2 Corinthians 4:16-18

Ray O. Sunshine

16 Apr

We had a visit at the NICU yesterday from someone very special…

We had a visit from Ray.

Ray O. Sunshine.

From her head to her toes, Ray came to bring us some cheer and brightening!

This awesome basket of yellow things was a bit of sunshine she left behind for us to enjoy.

The Happy Baby and I LOVED having Ray come.

(And I think everyone else in the hospital was thoroughly entertained as well.) :-)

“You, O LORD, keep my lamp burning; my God turns my darkness into light.” Psalm 18:28

Friday’s Favorite Five

13 Apr

I’m not going to lie.

The last 10 days have been some of the toughest I have ever experienced.

The not knowing is the hardest…

But that’s where faith begins.

“Now faith is confidence in what we hope for and assurance about what we do not see.” Hebrews 11:1

As we cling to our faith – trusting that the things we don’t understand and can’t control are in His good and perfect hands – we persevere.

And we realize that along the way God brings little blessings that keep our hearts encouraged in that promise.

Here are my Five Favorite Blessings from this past week…

1. HOSPITAL APPLE JUICE

That’s me.

Me holding two little apple juice cups in the maternity ward’s kitchen at the hospital.

I raided that fridge for apple juice several times a day.

Usually I stick to drinking water.

But man, when I have C-sections, those little cups of apple juice taste sooooooo amazing.

Click Image for Photo Credit

2.  AN AWESOME BREAST PUMP

With the Happy Buddy, I never pumped – never used a bottle.

Quite honestly, I was terrified of the idea of pumping and nipple confusion, etc., etc.

So naturally I had thought I would just do the same thing with the Happy Baby.

But it would seem that the Lord wanted to use our present situation to teach me!

And I am so grateful because I got to learn everything about pumping at a hospital with lactation specialists and super nice nurses.

Not to mention the fact that two of my sweetest friends went out and bought me an amazing pump the first day we knew I’d need one.

I love how God eased me into something that had once made me want to curl up in the fetal position! :-) Click to Buy

3.  GREAT WORSHIP TUNES

I have learned that I cannot walk through a difficult thing without surrounding myself with worship music.

“Satisfy us in the morning with your unfailing love, that we may sing for joy and be glad all our days.” Psalm 90:14

This album by Kari Jobe has encouraged my heart tremendously over the last few weeks.

Especially the song “Savior’s Here.”  You can check the song and lyrics out HERE.

Click for Photo Credit

4.  FRIENDS/FAMILY WHO CAN DRIVE

When you have a C-section, one of the stinky outcomes is that you are not allowed to drive for at least two weeks.

This little rule has been testing me!

I keep wanting to hop behind the wheel in the middle of the night to go see my little buddy.

But God has provided several different family members or friends who have graciously offered to cart me back and forth from the hospital.

5. KANGAROO CARE

Yesterday during our visit the nurse asked the Happy Hubby if he wanted to do some skin-to-skin with the Happy Baby.

I immediately turned to my man and commanded, “TAKE YOUR SHIRT OFF!” :-)

Our little guy was so content snuggled up with his hero.  It did my mommy heart some good to see that!

Thank you for your continued prayers and encouragement.

The doctors are still trying to figure out a diagnosis for the Happy Baby, as it wasn’t what we originally thought.

I would have despaired unless I had believed that I would see the goodness of the LORD
In the land of the living.
Wait for the LORD;
Be strong and let your heart take courage;
Yes, wait for the LORD.”

Psalm 27:13-14

Milking

10 Apr

As I mentioned HERE, I have been pumping up a storm.

The other day while we were at the hospital, the Happy Buddy came across a blood pressure cuff.

He proceeded to hold the cord up to his belly button…

And informed me that he was ‘milking.’

A gift for the Happy Baby.

What a great big brother! :-)

The Real Happy Home Fairy

9 Apr

With the Happy Hubby’s job being that of a worship pastor at our church, the week before Easter is a busy one.

Not to mention Easter morning itself and all of those responsibilities.

Not to mention that our sweet Happy Baby is still at the hospital and we have been driving back and forth to see him as much as possible.

Needless to say, we were all pretty tired when we got home from church.

My mom called and said she would be bringing us something to eat for Easter dinner.

I opened the door for her when she arrived and she was carrying the above amazingness.

But then she headed back out to her car only to return with a giant box and a mischievous glint in her eye.

She then proceeded to transform our dining room table from a clutter pile into this Easter Wonderland.

She pulled out a tablecloth and spring-y table runner, set up our place settings with festive bunny napkins…

And placed an Easter chocolate on top for a special after dinner treat.

The best part?

She even brought a super fun Easter-themed game for us to play and get our minds off of the things that have been weighing on us this week.

My mom could have just dropped off the food and we would have been blessed.

But she took things a few steps further.

And the whole time she was scurrying around leaving magic all over our Happy Home, I couldn’t help but think that her actions are exactly those that model the spirit of Happy Home Fairy.

Taking the ordinary and making it extraordinary.

Celebrating the little things in life.

I mean, who knew that a paper napkin with a bunny on it would be the very thing that comforted my heart as we ate?

So there you have it, my friends.

Proof that my mom is the one who really should be writing this blog.

:-)

The Happy Baby – An Update

7 Apr

It’s been a whirlwind of a week, my sweet friends!

Let me tell you, though – our God is faithful.

Even when our circumstances are not what we would want or expect, He is still moving and working and proving Himself to be oh-so-good.

One way the Lord showed me His goodness these last several days has been through your COMMENTS!

From the stories of your own personal NICU experiences, to simply a word that you are praying, God has used your encouragement to deeply settle my heart and help me to trust Him more with this difficult thing.

I wish that I could respond to each and every one of you, but with all the trips to the NICU (and they are slow trips since I am kind of walking like a Granny with this incision) – time is of the essence! :-)

I got to hold him the other day.

That was excellent therapy.

And one of my favorite moments was when the Happy Hubby and I had a time of worship with the little guy.

He is still not ready to begin nursing yet, but I have been pumping like a mad woman!

We are still waiting on the Lord to heal his breathing issues, but from what the doctors say, it should just be a matter of time.

One of you gave me this verse to cling to this week –

“Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us.” Ephesians 3:20

Thank you so much for your prayers and thoughts and comments – I would not have been so strengthened had you not taken the time to be obedient to write them!

With MUCH Love and Gratitude,

Julie :-)

Hippity Hoppity the Happy Baby is HERE!

4 Apr

Tuesday morning dawned bright and early in our Happy Home as the Happy Hubby and I packed our things and headed out the door for our 5 am arrival time at the hospital.

I have been wrestling for months with the idea of having a repeat C-section.

If you haven’t read about our first C-section, you can HERE.

Needless to say, every day I would lay the whole thing before the Lord and then pick it right back up again (usually in the dark, at night, in bed) and cry myself to sleep at the overwhelming fear of surgery (especially things like giant needles going into my spine), the reminders of the physically uncomfortable surgery aftermath, and the general disappointment that I will never be one that gets to experience a natural birth.

But Tuesday morning came and I literally felt enveloped in the peace and presence of the Lord.

Fears and anxieties had no place in my heart that day as they rolled me into the OR.

“I sought the Lord and He answered me, He delivered me from all of my fears.” Psalm 34:4

It also helped that the Happy Hubby kept me giggling with his silly antics (and over-sized scrub pants).

From the nurses to our wonderful doctor to the man with the scary needle anesthesiologist to even the fun reggae music playing throughout the surgery, I have never sensed the power of His presence more strongly in my whole life!

“The Lord is my shepherd; I shall not want…” Psalm 23:1

Then the Happy Baby came into the world and the atmosphere in the room changed.

Things got very serious and intense and the look in my Happy Hubby’s eyes told me that all was not well.

But even as I stared at the blue curtain, wishing I could burn holes into it with my eyes so that I could see what was happening as they worked on our little guy on the other side, I felt a supernatural peace.

“You will keep in perfect peace him whose mind is steadfast, because he trusts in you.” Isaiah 26:3

We soon learned that the Happy Baby was having a hard time breathing and would need to be rushed to the NICU for oxygen and constant monitoring.

Before they whisked him away, I had a few brief cheek-to-cheek moments with our precious miracle.

And that was the only time I got to hold him!

He is still in the NICU, so, sweet Happy Home Friends, would you please say a prayer that our little man would get breathing on his own?

My arms are aching to hold my baby, and I am so looking forward to nursing…

How these unexpected trials cause us to press into the Father as we trust in Him to be our strength, our shield, and our help (Psalm 28:7)!

Thank you from the bottom of our Happy Home’s heart!

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