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Happy Home Fairy

Helping Moms Build Happy Homes

A Day of Firsts

Today was a day full of a lot of firsts.

The Happy Buddy headed off for his first day of PreK-3!

What in the world, people?!

He is growing up so fast.

Today I used mousse in my hair for the first time.

I’ve always been a gel kind of gal, but mousse is so much less crispy!

Click Image for Photo Source

Today the Happy Hubby woke up and decided it was time he fried an egg for the first time.

And today was the first day we didn’t have to worry that the Happy Baby has a muscular dystrophy.

Because he doesn’t. 🙂

*Insert Shouts of Praise Here!*

He does, however, have subtle signs of mitochondrial damage (they are calling it mitochondrial myopathy)…

BUT (and that’s a BIG but) –

God has been doing such amazing healing in the Happy Baby’s body (especially since he has been home with us) that even the geneticist was mystified (I am not even kidding when I tell you that once the Happy Baby started rolling over – he also started lifting his head like we’ve never seen before!).

Doctor said he probably won’t be a superstar on the football field, and he will probably have some delays when it comes to milestones like walking and boyyyyyy are we still battling it out with the bottles, but otherwise it’s looking like our little boy is going to be just fiiiiiiine.

He mentioned something about getting the Happy Baby on a drug and also about coming to see him again in January for more tests, but when the Happy Hubs and I left the office, we decided not to schedule the next visit.

Because, quite honestly, we don’t think we are going to need it.

The doctor said he might not be a star athlete, but hasn’t the Happy Baby defied the odds already?

A friend reminded me of this truth recently, “”You, O LORD, keep my lamp burning; my God turns my darkness into light. With Your help I can advance against a troop; with my God I can scale a wall.” Psalm 18:28-29

God has already proven His power in the Happy Baby so far (um, rolling over at 4 months is not even developmentally delayed!) – we are rejoicing in His gracious hand on our son’s life and are believing for a 100% healing (aka giving that feeding tube the boot!).

I am headed to bed now!  Hopefully to sleep without an anxious heart – a definite FIRST since our journey began 4 months ago.

🙂

Love you guys.

“Be at rest once more, O my soul, for the Lord has been good to you.” Psalm 116:7

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About Happy Home Fairy

Julie Brasington is a Preschool Director, wife of a South Florida Worship Pastor and mom of 3 boys. She writes at Happy Home Fairy where you can find easy craft ideas, FREE printables, simple recipes, holiday fun, thoughts on raising kids, and encouragement for moms.

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61 Comments

  16. Sharon K. Berger

    So very happy to hear about your joyous news. I have been following your trials and praying for your precious Jet. My parents go to Rio Vista (Richard and Nancy Barnard) and they have been updating me along with this post. I know that our Lord Jesus has your little Jet in His plans to do wonderous things. God is good and He will be showing considerable many things in Jets future. Will continue to pray in regards to feeding tube removal and continued weight gain. In Christ’s Love, Sharon Berger

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  30. lizlacy

    I am so very excited!! I am rejoicing with tears of joy in my eyes. I am sure the smile will reach all the way into your eyes now. I also know the feeling of how did he get to three so fast. (Don’t blink, He will be going off to college, pray for me as my former 3 year old is now going to college next week) So thankful to have a God who knows our hearts, He is using your family for His Glory, What a great place for you to be, even in your struggle you have been such a great example for so many, getting past your pain and reaching out to others who are hurting. We love you guys.

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  34. jane hall

    Julie,

    Your journey has been an unbelievable test of Trust and Faith. Not only for a humble trust in the many doctors that have come your way but to truly truly, I say, truly, trusting in our great God no matter the outcome. Isn’t that what life is really all about. It was evident at the end of the day despite all the advise that the doctors gave, that clearly God was and is completely in control. So blessed that you and Ryan stood the test of your Faith, clearly on your knees and taught us all what it means to be a follower of Christ. Life is so not easy and scripture speaks of this often, however, we do not stand alone but have the most precious friend and savior holding us and guiding us at every move, Christ. Besides, the light that comes from the eyes of your precious son, Baby Jet, really says it all, I am truly loved and happy. Love you bunches, Jane

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  45. Tracey

    Tears of joy for you and the Happy Baby! I knew in my heart it would be okay – he looks too healthy and happy for it not to be! and to be rolling over and holding up his head – I would say he is right on target (aside from the feeding tube which I am sure in time will right itself as well). Best wishes to all of you and I will look forward to watching this little guy grow and progress in his own time – love all your pictures. Seeing that little guy’s great smile really makes my days sometimes – what a joy and a blessing not only to you but to God and your church and community. Thank you for sharing your joys and sorrows and trials and tribulations and successes with us – it really helps us keep perspective on our own lives. Thank you and may God bless all of your days.

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  57. Sam

    I am so happy to hear that. I shared that with the staff in my office after I received this post from Laura, and it erupted in cheers. You guys are so loved. Thanks for modeling such an amazingly sweet, tender, and honest faith through this painful season. Your blog has left me teary-eyed a time or two. I much prefer teary-eyed rejoicing! As I’ve said before, your little Jet has been the source of more ministry in a few months than many accomplish in a lifetime.

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  61. ChristyK

    Doctors do not know everything 🙂
    My daughter was sent home with us to die when she was almost 5 months old. We were foster parents and she was the first child ever placed with us. She is almost 9 years old now and the cardiologist is absolutely amazed by her. We do still see several specialists, but more bc insurance requires it to continue to cover her than for any other reason.
    Her cardiologist uses her as an example to his students to be willing to pray for and with your patients and accept miracles as miraculous and not as flukes…..
    I will continue to pray for you!!!

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